What it was like having cancer as a child.

Eric

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Sep 11, 2013
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I have always been hesitant to talk about this but after I saw Andy here open up about his triumph, I felt inspired to let it out.

I had leukemia when I was two years old. The doctors didn't know why I developed the disease as no one in my family had contracted the disease before. Although leukemia is more common in children, the diagnoses was unexpected.

I don't remember being told I had the disease. My earliest memories are of me being probed by doctors and being in a hospital bed. I didn't get it.

Without any knowledge of how a kid is suppose to live, I thought this was normal, something all children endured.

As I moved along in my three year treatment, I began to realize that I was different. I began to resent myself. I wondered why I was bald as a four year old, why I couldn't ever be around other kids, and why I was always attached to some type of machine.

My dad took it the hardest, when he found out I was 70% likely to die. My mother sat by me the whole time. She did more for me in those three years than most mothers do in a lifetime. My gratitude is not something I can articulate just yet.

I was recently told that I was part of a group that would receive a particular treatment. On the day of the scheduled treatment, my regular doctor called and advised my family against letting me take it. My parents decided to hold out and wait. Each of the kids that took the treatment in that group died. It still shakes me up to think about.

After being pumped with numerous drugs, I finally was recovered. My hair started to grow back and I regained strength. It wasn't until years later where doctors cleared me as 100%.

The next few years were the hardest. Although I was better, I was still being tested for progress. At this point, I was almost embarrassed of my bad luck. I told kids that I got to skip school for fun when in reality, I was getting ultrasounds and needles jammed into my back for marrow. Whenever I would have to take my shirt off, I would tell the kids that the huge scars from my portocafs were from a bike accident. I didn't want to be different. I wanted to be normal.

I hid my secret from most people, only letting a select few inside. I thought it was the biggest secret in the world. I didn't want kids to think I was damaged goods. It was the first time I got an understanding of trust, I trusted the people I told not to judge me and not to tell others.

When I turned 18, doctors stopped forcing me to come in for treatment. We still have the last print out from my last visit hanging on our fridge at home. As some time passed, I began to almost forgive myself about having the disease. I have opened up, letting more people in without fear of judgment.

I used to think that cancer was just something to be ashamed about. Now I get it, I understand all the time and resources spent on me both my doctors and by my family. I know how much of a burden I was, whether my family wants to admit it or not.

It's why I put so much pressure on myself to succeed in life. I realize that I was given a second chance, and I have to earn that. I have been on borrowed time for years, and I need to make the most of it.

This isn't the best way I could phrase this entire post. It's the first time I opened up about it in my entire life. I just felt more encouraged after I saw Andy do the same. I am not trying to gain sympathy or hijack Andy's thread, I just was telling my story.
 
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Great recap, Eric. It's amazing you made it through and are still here today. What you went through as a kid was tough. Hope you have many more years to come.
 
Opening up actually helps relieve the bottled up secret stress over the years. Cancer isn't anything to be ashamed of. When we're younger, the kid version of ourselves take it pretty hard because you never want to stand out as "abnormal" in the "inferiority vs. industry" phase that we go through in elementary school. As adults though, obviously you don't want to tell this to someone you've just met haha, but letting some of your close friends and loved ones know actually gives some sort of little therapeutic effect because it feels good to get something off your chest. It feels good to know that people not only know, they still care the same way about you regardless. Humans are a very social bunch and that's why keeping things bottled up can lead to unnecessary illnesses.

I'm glad you can open up to a bunch of strangers you've never met over the internet. I know it must have taken some courage to do. :)
 
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No one should have to deal with cancer, and even worse when a child.
 
Wow, what a story, Eric. It brought tears to my eyes, to think of you suffering like that, undergoing all those excruciatingly painful medical procedures, and meanwhile feeling ashamed or to blame somehow. You know it now, but cancer is a monster, and you were under attack. You were not to blame, nor did you have anything to be ashamed of. It hurts me to think about an innocent little child going through that kind of experience -- terribly painful enough on its own -- and feeling so bad and different, wanting to just be a normal kid.

Man, you are a survivor. Wow. That takes some serious strength, to endure all that and not kill yourself, go crazy, get completely resentful, but instead come out the other side a kind, decent human being.

Thanks for the thread. I think it's great that you opened up about it. It sort of proves that you have nothing to be ashamed of. In fact, I think you have every right to feel proud of getting through all of that. Like I said, that takes some serious courage and strength. You must have some tremendous internal resources.

p.s. I hope this doesn't come across as trivializing what you went through, but I was reminded of an indie game, still in development, called "That Dragon, Cancer." It is developed by a father who lost his son to cancer. Seems like a sincere effort.
http://www.gamespot.com/articles/wielding-hope-in-the-face-of-the-dragon/1100-6410477/
 
Thanks everyone, but I don't consider myself a survivor. I don't remember a lot of it, so I don't remember even having the option of giving up. I guess my body just responded well. It's not something I think about too often. The scars on my chest are noticeably smaller and I stopped going to the doctor for it. I'll never be able to get a tattoo or donate blood, but that's whatever.

I don't consider myself brave or anything like that, I just was talking about my experience and how kind of bizarre it was.


Thanks for the kind words. I really wasnt trying to...impress? More so just let some of it out.
 
I knew someone who had leukemia. He was in my company, & looks completely fit. He wouldn't be allow to join the military if he was diagnosed. A couple of years later, I heard from a meetup with my ex company mates that he had died from leukemia, I think he was around 22-23yrs max.

I knew any other good mate that served with me during my military time. One day I got a messaged text from his brother that he died. Collapse one day in office & never wok up. No symptoms before. Age 32.

It hit me hard. I learned never to take live for granted, and get angry for life little misfortunes. Imagine getting worked out over waiting 30sec in a queue, when someone else is worrying if they lived another day, or have enough to feed their kids.

Your story is inspiring. Every time I get upset at life's little things, or wanting to quit, I can think of Andy. :txbsmile: