My surgery story

Andy

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Sep 11, 2013
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It's a long story, but I'll give you the short version: I went in 7/23 for removal of a benign mass in my lower intestine. A leak developed several days after the surgery, and there was some delay in getting it diagnosed; meanwhile I deteriorated as my abdomen filled with sewage. A second, more serious surgery was performed to repair the leak and clean me out.

"Everything that could go wrong, did go wrong." - my surgeon. I was in a delirium after the surgery, hypoxic, unable to get enough air to my brain. They did a tracheotomy and put in a breathing tube. I was in renal failure as well. I probably had about 50 pounds of excess fluid on me. I spent about 5 weeks in ICU. Multiple organ failure. I heard from several family members that "we didn't know if you were going to make or not," but I figured they were speaking out of worry and anxiety. When I heard the exact same thing -- "there were times we thought we might lose you" -- from an MD friend/colleague who was following my case closely, that hit me on an entirely different level. That's coming from an MD, not a family member -- I got close to death.

I don't remember that period. I was under sedation for most of the first couple weeks in ICU. Then I came around, and I remember just tons of fear and pain, fear and pain. I had to get on some Xanax at one point, I had so much anxiety.

Eventually I got dialysis, and that's when things started to improve. I was reduced back to normal size. I could breathe more easily. Less pain/discomfort.

Ok, sorry, I said this would be the short version... I gradually recovered enough to get out of ICU, go to a normal recovery floor, and then from there to physical therapy. My muscle strength was completely gone, I couldn't even get out of bed myself, much less walk. I got stronger, though, thanks to some very good therapy, and I was out in 2 weeks. I am still very weak, little tasks wear me out, and I use a cane sometimes, but I'm at home now (as of 9/23, exactly 2 months from my entry), and that feels good.

The experience was a wake-up call for me in a lot of ways. I was stuck in a rut, living a sedentary and fairly isolated lifestyle, spending a large chunk of my free time on TV, video games, and forum/news. That is going to change. I also learned about the importance of relationships; about how much caring/support there is out there for me that I didn't realize, about my need for a healthier diet/lifestyle; and how I need to be less hoarding and cheap with my money and instead spend it on enjoyable experiences and stuff (e.g., I plan to buy a new house and new car).
 
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I'm glad everything is ok, Andy. I didn't want to call attention to you going into surgery because I didn't know if you wanted the forums to know so I told those who asked you went to prison instead. It seemed like the right thing to do.

Glad you're back buddy. Stay strong and do what you have to do. You know we're here, always, to led support in any way we can.

:yyarr:
 
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It's a long story, but I'll give you the short version: I went in 7/23 for removal of a benign mass in my lower intestine. A leak developed several days after the surgery, and there was some delay in getting it diagnosed; meanwhile I deteriorated as my abdomen filled with sewage. A second, more serious surgery was performed to repair the leak and clean me out.

"Everything that could go wrong, did go wrong." - my surgeon. I was in a delirium after the surgery, hypoxic, unable to get enough air to my brain. They did a tracheotomy and put in a breathing tube. I was in renal failure as well. I probably had about 50 pounds of excess fluid on me. I spent about 5 weeks in ICU. Multiple organ failure. I heard from several family members that "we didn't know if you were going to make or not," but I figured they were speaking out of worry and anxiety. When I heard the exact same thing -- "there were times we thought we might lose you" -- from an MD friend/colleague who was following my case closely, that hit me on an entirely different level. That's coming from an MD, not a family member -- I got close to death.

I don't remember that period. I was under sedation for most of the first couple weeks in ICU. Then I came around, and I remember just tons of fear and pain, fear and pain. I had to get on some Xanax at one point, I had so much anxiety.

Eventually I got dialysis, and that's when things started to improve. I was reduced back to normal size. I could breathe more easily. Less pain/discomfort.

Ok, sorry, I said this would be the short version... I gradually recovered enough to get out of ICU, go to a normal recovery floor, and then from there to physical therapy. My muscle strength was completely gone, I couldn't even get out of bed myself, much less walk. I got stronger, though, thanks to some very good therapy, and I was out in 2 weeks. I am still very weak, little tasks wear me out, and I use a cane sometimes, but I'm at home now (as of 9/23, exactly 2 months from my entry), and that feels good.

The experience was a wake-up call for me in a lot of ways. I was stuck in a rut, living a sedentary and fairly isolated lifestyle, spending a large chunk of my free time on TV, video games, and forum/news. That is going to change. I also learned about the importance of relationships; about how much caring/support there is out there for me that I didn't realize, about my need for a healthier diet/lifestyle; and how I need to be less hoarding and cheap with my money and instead spend it on enjoyable experiences and stuff (e.g., I plan to buy a new house and new car).

Wow. This must have been quite the life experience for you. Glad you pulled through. Yeah, I asked where you were and people said you were away for a certain period of time indefinitely and such. I thought you were just an astronomer who went to space. But anyways, glad to have you back.

How did a leak develop and where exactly? Is it like the surgeon didn't completely close off the wound or some area during the first surgery?
 
Thanks for sharing, Andy. Glad to hear you got a new lease on life. If you need help spending that dough, feel free to give me a call. ;p
 
Damn man, crazy story, glad you made it out alive. What was your diet like before i'm curious?
 
Andy is back! You know, I had a feeling something was wrong. One day you were posting as usual, then *poof*, you disappeared. I created a thread in the mod forums about you and Plainview mentioned prison in a jokingly fashion. I am glad you are ok and on the road to recovery. To think we almost lost you there, bud.

As Plainview said, we are here for you .
 
Wow. This must have been quite the life experience for you.

Yeah, I'm still learning from it. Trying to use it for good.

How did a leak develop and where exactly? Is it like the surgeon didn't completely close off the wound or some area during the first surgery?

My leak was called "animostic" or something like that -- meaning it develops several days after the surgery (on average 4 to 7 days, mine was about 3 days). There wasn't a leak at the time of surgery. They test for leaks before they sew you up. There weren't any at that time. I heard the odds were 1 in 200. I've got to go in again for a follow up surgery in March or April (reversal of colostomy), and I'm not looking forward to that. However, the odds of it happening twice are pretty long.

Damn man, crazy story, glad you made it out alive. What was your diet like before i'm curious?

Thanks. Zone/peanut bar or cereal for breakfast, sandwich and chips (sometimes salad) for lunch, then TV dinner, sometimes fast food. I didn't cook at all. I was a "convenience" eater. My diet wasn't horrible, but it could be a lot better -- especially around those TV dinners and fast food.
 
Yeah, I'm still learning from it. Trying to use it for good.



My leak was called "animostic" or something like that -- meaning it develops several days after the surgery (on average 4 to 7 days, mine was about 3 days). There wasn't a leak at the time of surgery. They test for leaks before they sew you up. There weren't any at that time. I heard the odds were 1 in 200. I've got to go in again for a follow up surgery in March or April (reversal of colostomy), and I'm not looking forward to that. However, the odds of it happening twice are pretty long.



Thanks. Zone/peanut bar or cereal for breakfast, sandwich and chips (sometimes salad) for lunch, then TV dinner, sometimes fast food. I didn't cook at all. I was a "convenience" eater. My diet wasn't horrible, but it could be a lot better -- especially around those TV dinners and fast food.

Colostomies aren't fun at all. Takes a great deal to keep it clean and dirty free. I haven't had much experience with colostomy care but heard from my colleagues that it can be quite time consuming and you need to be very wary of any potential infections. Of course, it's also a negative to your body image.
 
Thanks. Zone/peanut bar or cereal for breakfast, sandwich and chips (sometimes salad) for lunch, then TV dinner, sometimes fast food. I didn't cook at all. I was a "convenience" eater. My diet wasn't horrible, but it could be a lot better -- especially around those TV dinners and fast food.

I understand, thats how my diet was until about 12 years ago. Now I juice organic only, s*** is expensive, but i think worth it. Its actually pretty convenient. Just freeze all your veggies and fruit add water, done.
 
Andy is back! You know, I had a feeling something was wrong. One day you were posting as usual, then *poof*, you disappeared. I created a thread in the mod forums about you and Plainview mentioned prison in a jokingly fashion. I am glad you are ok and on the road to recovery. To think we almost lost you there, bud.

As Plainview said, we are here for you .

Thanks, man. I was just talking to my sister in law, and she told me that after the second surgery, the surgeon told my brother I had a 50/50 chance; I might make it, and I might not. He said the next 48 hours would tell. A couple days later, the surgeon said to my brother, "He's going to make it, because he's a strong man, and he's fighting." It gets me pretty emotional when I hear stuff like that, and it's hard to wrap my head around. I've heard it from very sober family members and two MDs now. I don't remember any of that period. I learn more whenever I talk to people who were present. And I'm surprised at how many people were frightened, praying, there every day or close to it, tuned in, upset, and concerned. I really didn't appreciate how much support I had, until this happened. That's been one of the nicer things about it -- and realizing how important that is.
 
Way to go, man. Glad you're okay. You are one of the nicest people around here.

I had leukemia as a child, so I know what it's like to have the odds stacked against you for reasons only defined by bad luck. Let me know if you ever want to talk.

Andy >
 
Colostomies aren't fun at all. Takes a great deal to keep it clean and dirty free. I haven't had much experience with colostomy care but heard from my colleagues that it can be quite time consuming and you need to be very wary of any potential infections. Of course, it's also a negative to your body image.

I'm early in the process, but so far it hasn't been too bad. It was hard to deal with at first, but I got adjusted, more or less. It does take some time to deal with, and it's not pretty, but it's just one of those things I've had to accept, because, you know, what choice do I have?

The ICU nurses said they wished all patients were like me, willing to do whatever they needed done. There were a lot of uncomfortable and painful things I had to get done, but I figured, "What choice do I have? Am I going to say 'No' to a team of people trying to help me?" So I just cooperated. Apparently a lot of patients don't do that, they resist and put up a lot of fuss. I just tried to accept it and hold on, waiting to turn that corner.
 
Wow, uncanny timing with this thread Andy... I was actually just pondering today about how I didn't think I'd seen any posts from you in a long while... I guess that uncertainty is settled now!

My god man!

Sounds like you've been through hell and I'm sorry to hear it, but very glad to know you're getting well again. Know that your absence WAS felt around here (which may bring little solace, but it's gotta be worth SOMEthing!).

Best wishes for a swift recovery and continued good health.
 
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I'm early in the process, but so far it hasn't been too bad. It was hard to deal with at first, but I got adjusted, more or less. It does take some time to deal with, and it's not pretty, but it's just one of those things I've had to accept, because, you know, what choice do I have?

The ICU nurses said they wished all patients were like me, willing to do whatever they needed done. There were a lot of uncomfortable and painful things I had to get done, but I figured, "What choice do I have? Am I going to say 'No' to a team of people trying to help me?" So I just cooperated. Apparently a lot of patients don't do that, they resist and put up a lot of fuss. I just tried to accept it and hold on, waiting to turn that corner.

I wish you were my patient, haha! Makes my job a lot easier. Kudos to you for willing to go through all the discomfort and painful things. I understand how some of these can be really intimate care raising your discomfort level to the max but in the end, it's all for your own good really. A lot of patients don't understand it really, they want the short way out but in healthcare, there is none. This is your health and you're damn sure we want to promote your well-being the best we can until you're discharged. Unfortunately that just takes time. Keep your head up! :)
 
Thanks, man. I was just talking to my sister in law, and she told me that after the second surgery, the surgeon told my brother I had a 50/50 chance; I might make it, and I might not. He said the next 48 hours would tell. A couple days later, the surgeon said to my brother, "He's going to make it, because he's a strong man, and he's fighting." It gets me pretty emotional when I hear stuff like that, and it's hard to wrap my head around. I've heard it from very sober family members and two MDs now. I don't remember any of that period. I learn more whenever I talk to people who were present. And I'm surprised at how many people were frightened, praying, there every day or close to it, tuned in, upset, and concerned. I really didn't appreciate how much support I had, until this happened. That's been one of the nicer things about it -- and realizing how important that is.

WOW. Dude so happy you had that support system, maybe it helped give you strength.
 
That's really scary. I'm glad everything turned out alright. I kept wondering what happened with the absence and all. Hope you keep getting better. A man needs some muscle on him.
 
Welcome back Andy. Glad you made it man.

I have to agree with others that have said that your absence has been felt.
 
Sounds like you've been through hell and I'm sorry to hear it, but very glad to know you're getting well again. Know that your absence WAS felt around here (which may bring little solace, but it's gotta be worth SOMEthing!).

Best wishes for a swift recovery and continued good health.

Thank you. :)

You know, it does bring some comfort, knowing that my absence was noticed. This is a group I've been a part of for 10 years, and although we don't even know each others' real names and probably won't ever meet in person, there's still a sense of knowing people (some more than others) and a connection.

I wish you were my patient, haha! Makes my job a lot easier. Kudos to you for willing to go through all the discomfort and painful things. I understand how some of these can be really intimate care raising your discomfort level to the max but in the end, it's all for your own good really. A lot of patients don't understand it really, they want the short way out but in healthcare, there is none. This is your health and you're damn sure we want to promote your well-being the best we can until you're discharged. Unfortunately that just takes time. Keep your head up! :)

Thanks, Dried Mangoes, I will. You're right about it all being for the patient's good. It's hard to remember that sometimes and easy to slip into a "Oh Jesus, what now?" sort of mode.

What do you do in the medical field, DM? You may have told me, but I forgot.

WOW. Dude so happy you had that support system, maybe it helped give you strength.

It absolutely did, without a doubt. I'm still amazed at the people who stepped up (and surprised/disappointed at a couple who didn't).

That's really scary. I'm glad everything turned out alright. I kept wondering what happened with the absence and all. Hope you keep getting better. A man needs some muscle on him.

Yeah, I lost 40 pounds, a lot of it muscle. I'm at about 30% strength, I'd say. I need to be more like 60% before I go back to work. But I'm continuing to do my "homework" as the physical therapists call it and will be doing outpatient PT once I get the referral from my primary doc.

Welcome back Andy. Glad you made it man.

I have to agree with others that have said that your absence has been felt.

Thanks, Dno.

I think my presence will be felt here a little less, in the future. I was living a very unbalanced and sedentary life, with sometimes hours per day spent on the internet forums and news sites, not just here but GAF, N4G, PSU, etc. I've eliminated all those other forums and will only visit Union. I plan to only visit a half dozen "watched threads" and check in every few days (rather than multiple times per day, like I did in the past). We'll see how it goes, but I want and need to make some big changes in how I spend my free time.
 
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Glad you are ok. If you have any questions on movement/training just let me know. Studying right now for a career change into a Personal Trainer but focused on Strength and Movement for people who have been couch potatoes(as I once was 6-7 years ago.)
 
Oh man that sounds scary, good that you made it.
 
I'm a nurse. ;)

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Congrats on the recovery! Having been given a 2nd chance at life so to speak is something that I am sure you will make good and you will in many ways see what you've been through as a blessing. We all should take each day as our last since there are no guarantees.
 
Fwiw, I had several outstanding male nurses in ICU -- which, from what I hear, is where a lot of nurses want to work, so they get the cream of the crop. These guys were heroes to me. I'd often tear up at how diligently they worked (at some pretty gruesome tasks, sometimes) to help me. They were just pros. Some of the stories I heard later about how closely they monitored me during my most critical period were very impressive and reassuring. I heard nothing but praise for them from my family and friends. They did an outstanding job. These guys deal with critical, often life and death situations every day, and sometimes it turns out death. I'll never again complain about my job being hard.
 
Wow man, glad you're alive and more well than you were previously! Hope you continue to improve.
 
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